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About Claire

Claire was diagnosed with a congenital diaphragmatic hernia birth defect during her 19-week ultrasound. She was born in June 2007 in Birmingham, AL. She had repair surgery when she was 6 days old and was in the hospital for 22 days. She had surgery again when she was 3 years old to fix a re-herniation, and she also began wearing a brace for CDH-related scoliosis.

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CDH Info

  • What is CDH?
  • CDH Video
  • Postdischarge Follow-up
  • Raising Healthy CDH Children (Facebook)
  • Raising Healthy CDH Children (Blog)
  • DHREAMS Research Study
  • Mass General Research Study
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  • Breath of Hope
  • CHERUBS
  • Global CDH
  • Nayeli Faith Foundation
  • Parker Reese Foundation
  • Real Hope for CDH

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Baby Claire - CDH Story

Tuesday, June 16, 2009

New Blog

I started this blog before Claire was born to keep our family and friends updated about her CDH. It was a great tool to have while we were up at the NICU because it kept me from having to make so many phone calls and allowed everyone to see pictures. Since then it has become an "online baby book" (I love going back and reading my old posts and remembering all of Claire's major milestones), has kept our out-of-state family in the loop, has raised awareness about the congenital diaphragmatic hernia birth defect, and has provided hope and information to expectant CDH parents who stumbled across it via search engines.

But now that Claire is two years old and doing so well, it seems like a good cutoff point. So I'm going to stop posting here and start a new family blog instead. Please update your bookmarks to http://williamsfamilytn.blogspot.com if you'd like to keep reading about our wonderfully exciting life :-) If not, thank you for keeping up with Claire these past few years and for all of your kind comments.

I'm going to keep this blog available to the public so that future CDH families can find it, and am going to get it printed into a book for Claire to have when she is older.
posted by Cindy at 8:02 PM

3 comments:

Karen said...

Thank you for blogging about Claire, we have greatly appreciated it as we learned we too would have a CDH baby. It had so much helpful information. If you don't mind I will still continue to follow your new blog as I like to see that Claire is such a normal little girl and it gives me hope that Madelyn will also develop into a normal little girl. Thank you again.
Karen

June 17, 2009 at 10:17 AM
Ege Uysal said...

http://egeuysal.blogspot.com/

September 4, 2009 at 7:40 AM
Anonymous said...

Thank you for this blog...and the new blog! I am facing the same diagnosis with my little one I just cannot convey how much it helps to see Claire, blessed, healthy and happy. Thank You God Bless!

April 11, 2012 at 2:39 PM

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