Wednesday, November 28, 2007

CDH Awareness Day

I belong to a support group for parents of CDH children called Breath of Hope. They have a campaign underway to get March 31, 2008 proclaimed as Congenital Diaphragmatic Awareness Day in all fifty states. This fall a few other Alabama moms and I wrote to the governor requesting that he proclaim this day. I just received a signed proclamation from him that declares the entire month of March as Congenital Diaphragmatic Awareness Month! I'm going to frame the proclamation and show it to Claire when she is older.


I believe that thirteen states have proclaimed the day so far. I asked my friend who lives in Maine to write to her governor and he proclaimed the day, and I asked my sister-in-law in Georgia to write her governor and he proclaimed the day as well. I am still working on Arkansas (where my brother lives) and Tennessee (where I now live).

Several events are being planned by CDH parents all over the country to promote awareness on March 31, including rallies, candlelight ceremonies, blood drives, and wearing turquoise. I told Claire's surgeon about it the last time we saw her and she got really excited and agreed to spread the word and pass out turquoise ribbons around the hospital.

Monday, November 26, 2007

Solid Food

Claire has been eyeing our plates at dinnertime for the past week, so on Thanksgiving we gave her a bite of sweet potato. That was the first solid food she has ever had -- up until now she has only had milk. She wasn't sure what to do with it at first, but eventually swallowed it and seemed to like it. Today I fed her some rice cereal and she gobbled it up. After each bite she would give me a big smile. When I held out the spoon for another bite she opened her mouth and was ready for it.

I think she might be teething. Her bottom gums are puffy and she has been drooling and gnawing on everything in sight (including her feet). She has also been a bit cranky. Hopefully that tooth will break through soon.

Wednesday, November 14, 2007

Lifting Up My Head

Claire has finally figured out how to lift up her head when on her tummy! Now that she can raise up she is able to flop over onto her back. She hasn't mastered this all the way yet, but is getting stuck less often. The girl is rolling all over the place and chattering! She has been taking lots of naps during the day because she wears herself out playing so hard.


We got settled into our apartment and are learning our way around Nashville. We found Target and Wal-mart so we are set. We have been looking at houses and are meeting with a realtor this weekend to go inside some of them. (Hopefully our house in Birmingham will sell soon.) We are also going to start visiting churches to find one we fit in at. I'm anxious to make some friends up here. Although Claire is a budding conversationalist, it is lonely being in the apartment all day while James is at work.

Thursday, November 8, 2007

Follow-Up Appointments

Claire turned 5 months old yesterday! We saw her surgeon and pulmonary doctor today at Children's Hospital in Birmingham. She weighs 12 lbs 12 oz and is 25 inches long. When I took her diaper off and laid her on the scale she peed everywhere and we had to start over again :-)

Everything on her chest x-ray looked good and her lungs are growing well. Her sat level was 98. She showed off by smiling and babbling to the doctors and nurses. They told me to continue giving her Zantac for reflux and increased her dosage since she weighs more now. They also want her to get a flu shot next month when she is 6 months old (oh no, not MORE shots!). The pulmonary doctor told her to not get sick this winter, and hopefully she will listen to him.

I told the surgeon we were moving to Nashville and asked if we should transfer to Vanderbilt for follow-ups. She thought it best if Claire keeps coming to Birmingham to see her until she is at least one year old. That is fine with me because I feel comfortable with her since she did Claire's surgery and has been involved with her case since before she was born. So we will come back down for follow-ups every three months until Claire turns one, then every six months until she turns two, then once a year after that. But if there ever was an emergency (reherniation, etc.) she said we would be in excellent hands at Vanderbilt.

James started his new job in Nashville on Wednesday and so far he really likes it. We rented an apartment up here until our house sells. I'm taking Claire back to Children's tomorrow for a hearing re-evaluation, then we are heading up there to check out our new digs.

Sunday, November 4, 2007

Cutest Baby

My stepdad entered Claire's picture into the Redstone Arsenal's cutest baby contest at his work. She won the cutest girl category and raised $136 for CFC. We got a gift certificate to Portrait Innovations and she will be listed in Redstone's next newspaper. I also entered the chick picture into Breath of Hope's Halloween Costume contest. The winner will be selected next week and wins a $25 gift certificate to Amazon.com. Maybe JonBenét's mom was on to something -- just kidding!

This weekend Claire enjoyed watching football while we packed. She was particularly vocal during the Alabama vs LSU game...