Sunday, June 17, 2007

Day Ten

What an eventful day! Not only did Claire get off the respirator, but James and I also got to hold her and then the nurse fed her for the first time. She gave her a little bit of Pedialyte. Claire didn't like the bottle being in her mouth at all (she just got rid of all those tubes that were in there), but she eventually started chewing on it and then swallowed a few sips. She sputtered and coughed a bit -- she has to learn to breathe, suck, and swallow. They are going to try giving her some milk tomorrow. The nurse said she may have to have a feeding tube until she learns to eat so that she will not lose weight. They are also going to leave the PICC line in just in case they need to keep feeding her that way like they have been doing since the beginning.

A nice lady from the Birmingham Smocking Arts Guild gave Claire a beautiful handmade dress. When we got there this evening the nurses had dressed her in it along with frilly socks and a white hairbow. She looked very fancy.

I went crazy taking pictures today. There are loads of them here.


Cathy said...

I'm so glad that you all three had such a great day. Thanks for sharing it with us.

Angie Davis said...

Cindy, I am so glad to hear your little one is doing so well. She really is so beautiful! We will keep praying for her - hopefully she will get to come home with you guys soon!

Sharon said...

OOOOO what great news!! You all look so great--what wonderful family pictures!!!

Anonymous said...

Oh, I can remember those two momentous days SO well...extubation AND getting to hold her for the first time. Except for us, it was two separate days!
She is just gorgeous! And Mom and Dad couldn't look happier!

Hoorah, Claire, you overachiever!!

Libby Cohen
Mama to Makena LCDH 9/30/06

Vikki said...

I am so glad all is going well with Claire's recovery! I stopped by on Friday with a gift and a prayer. I hope to make it by again to say a prayer with you guys. You all are on our prayer list at church. If you need anything I am at ext 2364.


Clay said...

Thanks for keeping us updated Cindy. Sounds like she is doing really well. Praise the Lord!

Anonymous said...

I have been away for the weekend and came back to read this fabulous news! Way to go, Claire! She is just so beautiful especially in that little dress. I'm so happy that everything is going so well! I will continue to pray that eating gets easier for Claire and that you'll take her home soon.

Love Lauren
Avery's Mommy

Paul, Jacque, & Kaely said...

Congratulations! I got your website from Baby Jackson's website - which was given to me by Texas Children's in Houston. Our daughter also had CDH - was born Aug 2006. She was on ECMO and the whole nine yards and is the happiest ever now ( I love to read stories such as your's. Please keep sharing your experiences w/ other CDH families-- it's so important for people to realize the success stories make everything worth it. Congratulations again!