Tuesday, June 26, 2007

Day Nineteen

I think we are still set to be discharged on Thursday. We will find out for sure tomorrow.

They brought us the oxygen equipment for Claire to use at home and trained us on how to operate it. There is one big oxygen generator that plugs into the wall outlet. It hums very loudly. There is also a small portable tank that we can hook her to when we leave the house. She also has a sensor on her foot that is hooked up to an oximeter with an alarm that goes off if her O2 sats or heart rate go below a certain level.

Tomorrow they are giving us a CPR lesson. We are also supposed to meet with a pulmonary specialist.

Claire is spitting up a lot less (she is still on Zantac) and has been drinking about 50 mL per feeding. I think tomorrow they are going to increase her goal to 65 mL. Pray that she will start drinking more and not lose weight. Otherwise they may have to insert a feeding tube.


Anonymous said...

SO happy to hear that Miss Claire will be going home soon! What an amazingly quick journey you all have had (not to say it wasn't hard!!). Best wishes...after all of this, it will be amazing to walk through the door for the first time with your little princess...

Mama to Makena LCDH 9/30/06

Carole said...

So happy to hear that Claire is coming home soon!!! I can't wait to see the pics of her home...where she belongs.

Jennifer said...

YAY!! I bet it is going to be one awesome Homecoming!!! She has been through an emotional journey and the best part is that she will never remember what has happened to her. As for you, well you will never forget what she has been through. (((HUGS)))

Praises be to God!!

Anonymous said...


Reba and I are going out of town tomorrow and won't be back until Saturday. I'm going to bring a meal over to youall soon and we need to figure out when the shower will be.

I hope she does get to come home tomorrow. Praise God!