They brought us the oxygen equipment for Claire to use at home and trained us on how to operate it. There is one big oxygen generator that plugs into the wall outlet. It hums very loudly. There is also a small portable tank that we can hook her to when we leave the house. She also has a sensor on her foot that is hooked up to an oximeter with an alarm that goes off if her O2 sats or heart rate go below a certain level.
Tomorrow they are giving us a CPR lesson. We are also supposed to meet with a pulmonary specialist.
Claire is spitting up a lot less (she is still on Zantac) and has been drinking about 50 mL per feeding. I think tomorrow they are going to increase her goal to 65 mL. Pray that she will start drinking more and not lose weight. Otherwise they may have to insert a feeding tube.