Saturday, June 30, 2007

The Good Life

Being at home has been awesome. We are able to cook real food -- no more disgusting hospital food. We can lay on the couch and take naps and watch TV. It felt GREAT sleeping in our own bed and not on a hospital recliner. And although it was interrupted by feedings, we got a lot of sleep last night because nurses and doctors weren't constantly coming in and bugging us.

Since Claire is tethered to the oxygen generator and oximeter, she is pretty much confined to our living room and bedroom. Her nursery is upstairs where she can't go yet, so we brought most of her supplies downstairs. They are somewhat organized into various piles. We put the Pack n Play beside our bed and she seems to really like sleeping in it. During the day she likes being held, sitting in her bouncy seat, and napping on the pallet we made for her in the living room floor. I can't wait until she gets off the oxygen and we can carry her around without worrying about all the wires.

Friday, June 29, 2007

Home Sweet Home

It is so good to be home! We got here at around noon, unloaded the car, and fed Claire some lunch. Then she tried out her bouncy seat for a while, and now she and Daddy are napping.

Here are some more pictures of her homecoming.



We Get to Go Home!

Yesterday we fed Claire every 2 1/2 hours and fortified her milk with formula. This seems to have done the trick because she had gained when they weighed her last night, so the doctor said we can go home today! It will be a few more hours because we have a ton of stuff to do before we can be discharged, but hopefully by this afternoon we will be out of here :-)

James and I didn't get any sleep last night because Claire was REALLY fussy, probably due to all the food we packed into her and the new formula upsetting her tummy. We were both SO tired this morning, until the doctor came in and told us we can leave. That gave us renewed energy, and we ran around packing up everything. We picked out Claire's going-home outfit and I'm going to gussy her up after they remove the PICC line from her head and I can wash her hair. Her car seat is installed and I've got the camera primed to take lots of pictures of her homecoming.

Thursday, June 28, 2007

Not Going Home Today

They weighed Claire last night and she had lost weight, so we can't go home today. They are going to start supplementing my milk with formula to give her extra calories. They are sending a nutritionist by to talk with me today. I am going bonkers in this hospital room, but would hate for them to send her home too early and her get dehydrated or lose a lot of weight over the weekend.

Wednesday, June 27, 2007

Day Twenty

The surgeon came by tonight and said we might get to go home tomorrow. They are waiting until they weigh Claire tonight before telling us for sure, to make sure that she gained.

She is still only able to drink about 50 mL at a time, and that completely wears her out. It takes a lot of effort for her to coordinate her breathing, sucking, and swallowing. And since her lungs are underdeveloped she burns more calories breathing than the average baby, which is why they are so concerned about her weight. I stopped trying to breastfeed her for now because it takes less effort for her to drink from a bottle and we can better gauge how much she drinks.

Besides gaining weight, another big concern is to keep her from getting sick. A cold could be devastating on her poor little lungs. We are going to have to limit her contact with other people, especially children, and especially this fall and winter during cold season.

The pulmonary specialist came by and said her lungs are moving air well. We are going to have follow up appointments with him over the next several months, as well as with the surgeon and with Claire's regular pediatrician. Everyone seems to think she will only need to be on oxygen for a few more weeks.

Tuesday, June 26, 2007

Day Nineteen

I think we are still set to be discharged on Thursday. We will find out for sure tomorrow.

They brought us the oxygen equipment for Claire to use at home and trained us on how to operate it. There is one big oxygen generator that plugs into the wall outlet. It hums very loudly. There is also a small portable tank that we can hook her to when we leave the house. She also has a sensor on her foot that is hooked up to an oximeter with an alarm that goes off if her O2 sats or heart rate go below a certain level.



Tomorrow they are giving us a CPR lesson. We are also supposed to meet with a pulmonary specialist.

Claire is spitting up a lot less (she is still on Zantac) and has been drinking about 50 mL per feeding. I think tomorrow they are going to increase her goal to 65 mL. Pray that she will start drinking more and not lose weight. Otherwise they may have to insert a feeding tube.

Monday, June 25, 2007

Day Eighteen

We survived the night, but didn't get much sleep at all. Getting up every three hours to feed Claire wasn't so bad, and she was pretty easy to get back to sleep afterwards. But then the nurses and doctors would come in every few minutes to ask questions or check her vitals or weigh her, so they kept us up all night in between feedings. It is impossible to sleep in a hospital! My mom drove down this morning to give me a break and I was able to go home and nap for a few hours. She is staying at the hospital with me tonight so that James can go home and get some sleep.

Claire is still having trouble drinking 60 mL. They may start supplementing my milk with formula so that she can drink less but still get the calories she needs.

They tried taking her off the oxygen again today but had to put her back on after a few hours because her sats went down. She just needs a little boost to help her lungs. Since she has failed the test twice she will most likely come home on oxygen. We are meeting with a pulmonary specialist tomorrow to find out. If she does require oxygen it will most likely only be for a few months.

They are talking of possibly letting Claire come home on Thursday, but nothing is definite yet. I can't wait to get her home!

Sunday, June 24, 2007

Day Seventeen

They moved us to a hospital room this morning! They also unhooked Claire's IV and heart monitors. They took her off the oxygen for a few hours, but her sats got low so they put her back on it. She was NOT happy to have that cannula stuck back in her nose. At least she's down to two wires now -- her oxygen and the cuff on her foot that measures her sats. They are going to leave the PICC line in her head until she is discharged, but it is not hooked up to anything.

Since they unhooked her IV she is only receiving nutrition from the milk she drinks. They upped her feeds to 60 mL but so far she hasn't been able to drink that much. We are working on it.

We are thrilled to be in a room and able to stay with Claire all the time rather than only during visiting hours. We are also nervous because tonight is our first night to spend with her. Say goodbye to sleep!

Saturday, June 23, 2007

Day Sixteen

They increased Claire's feeds to 45 mL today, because yesterday she still seemed hungry after drinking 30 mL. She is still eating well and hasn't spit up for two days. Tonight she weighed 6 lbs 9 oz.

They also turned down her oxygen flow today. She still has an IV with fluids, but I think they will unhook it tomorrow. We are still waiting on them to move us to a room.

Friday, June 22, 2007

Day Fifteen

Claire did MUCH better with her eating today. She seems to be getting hungry now and is ready to eat after three hours. She gulped down her bottles easily and didn't spit up at all. When they weighed her last night she was 6 lbs 6 oz, so she is starting to gain.

They started reducing her oxygen flow in hopes to wean her off it over the next few days. The surgeon said she shouldn't have to come home on oxygen, which is a relief to us. She also said we would most likely move to a room early next week, which means no more visiting hours and I can spend the night with Claire.

Claire was very alert today and made all sorts of goofy faces. She also smiled several times, and reached out her hand to grab her fishies (aquarium mobile).

Thursday, June 21, 2007

Day Fourteen

Claire is two weeks old!

Today was more of the same -- try to get Claire to eat, try to get her to burp, try to keep her from spitting up. She lost a little weight when they weighed her last night, but I'm hoping when they weigh her tonight she will have gained it back. She is getting better at drinking from a bottle. Breastfeeding has not been successful at all, so I've decided to keep doing what works and just feed her from the bottle for now.

Claire needs to demonstrate that she is eating well and gaining weight and keeping her O2 sats up before they will let her come home. I'm hoping that early next week they will move her out of the NICU into a regular hospital room. She will probably come home with the oxygen cannula and have it for a little while.

We are absolutely sick of being at the hospital, and it kills us to have to leave her up there at night when we go home to sleep.

Wednesday, June 20, 2007

Day Thirteen

This morning Claire's nurse was concerned that she had been spitting up after most of her feedings. They decided to reattach IV fluids to her PICC line so that she doesn't get dehydrated. They also started her on Reglan for reflux, but later switched her to Zantac.

They let me try to nurse her twice today. The first attempt didn't go very well, but she drank a little during the second attempt a few hours later. We had to finish up her feeding with a bottle each time to make sure she drank enough. She seems to have absolutely no interest in food, and it takes a lot of coaxing to get her to start sucking.

Tonight James and I fed her from the bottle, burped her, and then I asked the nurse to prop the head of her crib up. This did the trick, because Claire didn't spit up at all.

The audiologist came in today and checked Claire's hearing. She said everything was fine.

Tuesday, June 19, 2007

Day Twelve

The NICU was closed to visitors all morning because they were doing a procedure on one of the babies there. So I didn't get to see Claire until 1:00. I held her from 1:00 until 2:00 when visiting hours ended. She slept in my arms the entire time and it was great.

She ate well again today so they unhooked her PICC line. She is no longer getting nutrients from the IV but only from the milk she drinks. She spit up several times today, but they think it is because she is not burping good rather than due to reflux. I tried laying her on my shoulder and burping her this evening and she let out a good one and didn't spit up, so we are making progress. Tomorrow I think they are going to let me try to nurse her rather than feeding her from a bottle.

The best news of all is that tonight they moved her to the "step-down" NICU! It is very posh. There is a lot of room around her crib and there are rocking chairs. It is also quieter there and they turn down the lights at night. The other NICU was loud all the time (a friend of ours said it sounded like a casino) and the lights were bright. I told James that when we get Claire home we will probably have to ring the doorbell to get her to go to sleep, since she is so used to hearing the dinging alarms in the NICU.


I asked one of the nurses when he thought Claire would get to go home and he guessed the beginning of next week. She needs to keep eating and she also needs to be weaned off the oxygen.

Monday, June 18, 2007

Day Eleven

Claire drank milk for the first time today. They want her to drink 30 mL (1 oz) every three hours. I fed her this morning and she drank 8 mL. Granny fed her a few hours later and she drank 20 mL. The nurse fed her this afternoon and she drank 30 mL. Daddy and I fed her this evening and she drank 30 mL again! She seems to be getting the hang of it now. I was worried that she would have reflux problems, but so far she is keeping the milk down just fine. I think she likes it a lot better than Pedialyte.


They weighed her last night and she was 6 lbs 2 oz. Her tummy doesn't seem to be as sore anymore -- they stopped giving her morphine and are only giving her Tylenol now. She is still too hoarse to make much sound when she cries, but is getting a little louder every day.


Dr. S stopped by to check on Claire this morning and said she is doing great and that she wished all of her CDH patients did this well. They are going to continue weaning Claire's oxygen down. She is ready to get that cannula out of her nose -- she keeps trying to pull it out with her fingers. They have mentioned moving us to a room if she continues to do well. I am hoping that she will be able to come home next week.

Sunday, June 17, 2007

Day Ten

What an eventful day! Not only did Claire get off the respirator, but James and I also got to hold her and then the nurse fed her for the first time. She gave her a little bit of Pedialyte. Claire didn't like the bottle being in her mouth at all (she just got rid of all those tubes that were in there), but she eventually started chewing on it and then swallowed a few sips. She sputtered and coughed a bit -- she has to learn to breathe, suck, and swallow. They are going to try giving her some milk tomorrow. The nurse said she may have to have a feeding tube until she learns to eat so that she will not lose weight. They are also going to leave the PICC line in just in case they need to keep feeding her that way like they have been doing since the beginning.

A nice lady from the Birmingham Smocking Arts Guild gave Claire a beautiful handmade dress. When we got there this evening the nurses had dressed her in it along with frilly socks and a white hairbow. She looked very fancy.

I went crazy taking pictures today. There are loads of them here.



Extubated!

Claire got taken off the ventilator this afternoon! She no longer has any tubes in her mouth, just an oxygen cannula in her nose. Her throat is very sore from having the tube in there for so long, and her cries are still silent because her vocal chords are swollen. They are going to watch her this afternoon and do another blood gas to make sure she is breathing okay without the ventilator. There is a chance she might have to go back on it, but so far she is breathing just fine. James said it was the best Father's Day gift ever.


She also got moved to a big girl crib last night. When we got there this morning she was wrapped up like a little burrito, but the nurse said she must be hot-natured (like her daddy) because she kept wriggling out of the blanket. We brought some mobiles for her to look at and she was mesmerized by the aquarium one.


She had two poopy diapers this morning, which means her intestines are working fine since the surgery. They are going to try feeding her some milk tomorrow. Today we are going to try to get her to suck on a pacifier.

The nurse said that James and I can hold Claire tonight! We can't wait for the visitation hours to begin again.

Saturday, June 16, 2007

Day Nine

Claire had a great day today! Her oxygen percentage has been cut down to 24% (21% is room air) and her respirator rate has been turned down to 32 (she has to get down to 17 to be extubated). The nurse thinks she will probably be ready to come off the vent within the next few days.

She was very alert this evening. We gave her a bath and kissed on her and talked to her for a long time. It was very hard to leave at 10:00 when visiting hours ended.

Since Claire's body temperature has been pretty stable, they are going to move her to a crib tonight! She will get to wear real clothes tomorrow and we are bringing her mobiles up there so that she will have something interesting to look at.

Here is a video of us giving her a bath...



Here is a video of Daddy kissing Claire goodnight...

Friday, June 15, 2007

Day Eight

Claire gave us quite the scare today, but she is doing much better now. When we got there this morning the nurse told us her latest blood gas had not been very good. She did another one a few hours later and it was even worse. Her breathing began to look very labored. She listened to her lungs with a stethoscope and her right lung was wheezing really badly (she let James and I listen to it also). She called the respiratory therapist in to give Claire some albuterol to help with the wheezing. That helped a little, but made Claire tremble all over and her heart rate go up.

A little while later she started really having trouble breathing -- her poor little chest was heaving and all of her monitors started going off. The nurse paged the on-call doctor and also Claire's surgeon. They suspected the ventilator tube that goes into her trachea was clogged with mucus, and ordered a quick x-ray to be sure. It confirmed that the tube was clogged, so they extubated her and re-intubated her with a new tube. She started breathing much better after that, but was so tired out from all the struggling that she slept a long time. They ordered another blood gas a little while later and it was very good.


We talked to Claire's surgeon again this evening and she said the problem had nothing to do with Claire's lungs, that it was all due to the tube getting clogged. She said hopefully Claire will be off the vent before this becomes a problem again. Tonight they turned her oxygen level down to 36%, which is the lowest she has been at. Her ventilator rate is set to 45. They are going to keep lowering it this weekend, and we are hoping she will be able to come off the vent next week.

They removed her foley catheter this afternoon. She has lost most of the extra fluid and looks a lot less swollen. She had several wet diapers today, which she let us know about immediately (she HATES to have a dirty diaper).

We got to see her x-rays from before the surgery and after. On the first x-ray the gray stuff up in her chest on her left side is her intestines, and her stomach is the dark area in the middle behind her spine. The gray area on her right side is her heart. In the second x-ray everything has been moved down. There is now fluid filling her left side until her lung has time to expand and grow and fill up the space. Her heart is still shifted way over to the right, but will move to the center in time.
beforeafter

It Was the Tube!

Cindy said they re-intubated her, and it DEFINITELY WAS the tube that was clogged. They said it was definitely the equipment that failed and NOT the baby's breathing that was the problem. So now she is breathing MUCH better and they have "cranked up" the oxygen to get rid of the carbon dioxide that had been building up. Everyone is very relieved.

Cindy Called to Update

This is Cindy's mom. She called this morning and said the baby's blood gases have gotten progressively worse throughout the day, and she was having a difficult time breathing. They gave her a breathing treatment which helped, but left her very shaky. They also put Claire on morphine because the other pain med was wearing off too quickly and they thought this would help her be more comfortable. They think her tube they intubated her with may be clogged with mucus. They x-rayed because they wanted to make sure, as it was very hard for them to get the tube in to intubate her the first time. They just came in and said they have to replace the tube, and asked Cindy and James to leave the nursery so they can do it. Hopefully, this is what the problem is. They also said it could partly due to all her fluid she's retaining so they are working to help that, too. Please pray for baby Claire, Cindy, James, and the doctors that are putting in the new tube.

Thursday, June 14, 2007

Day Seven

Claire is one week old today!

She is still really puffy and swollen from the surgery. The nurses weighed her tonight and she was 6 lbs 8 oz. We figure she probably really weighs around 6 lbs and the rest is fluid. They put a foley catheter in her today to help drain some of it.

They turned her ventilator setting up to 40 and her oxygen level to 55% today, mostly because she has been so zonked out and is letting the respirator do most of the breathing for her. She was more awake tonight and opened her eyes some. James read "Morris Goes to School" to her, complete with the moose voice. Later on she started crying a little bit so they gave her some more pain medicine. She is also on antibiotics. I imagine when we get there in the morning her vent will be turned down some more.

She has been making lots of sucking noises with her mouth today. Maybe that means she is ready to get that tube out of her mouth and eat some real food!

This evening James and I gave her a sponge bath and put some lotion on her. Then she got "accessorized" with a purple hairbow that one of the other NICU moms made for all the girl babies up there.

Wednesday, June 13, 2007

Surgery

Claire had her surgery today. They ran late on the schedule and didn't transport her down to the operating room until about 5:30 pm. The nurses told us they usually don't start surgeries that late, that they postpone them to the next day. But our surgeon wanted to go ahead and do it (we were VERY thankful!) Here is a picture of her being transported to the OR. They let us walk down there with her.


They began the surgery at 6:15 pm and finished at around 10:00 pm. They were able to do the repair laparoscopically. She has four small incisions, one of which is in her belly button.


There were a lot more organs in her chest than they originally thought. Her stomach, spleen, a smaller second spleen, her small intestine, part of her large intestine, and part of her liver were all up. They were able to pull all of this down.

The hole in her diaphragm was pretty large. The surgeon thought she would have to use a gortex patch but was able to stretch enough of the diaphragm muscle across to stitch to the other side. Her left side is pulled in, but will eventually round out as the diaphragm muscle stretches out. There is a chance of re-herniation if the muscle pulls loose from the side, but they will do x-rays on her over the next several years to catch this if it happens.

Her left lung is very small and collapsed. Now that there is space in her chest, her left lung will be surrounded by fluid and then will hopefully grow. But it will never be the same size as her right lung. Her heart will eventually shift left towards its natural position, which will allow her right lung to grow larger and not be squished.

We got to see Claire after the surgery and she is completely zonked out and as limp as a rag doll (they gave her medicine to paralyze her). She is very puffy/swollen from the surgery. She is on fentanyl for the pain.


She has several more hurdles to clear. She needs to heal from the surgery. She needs to be weaned off the ventilator. Once off she needs to start eating -- either by feeding tube if necessary or by bottle if she breathes/swallows good. The timeframe for each of these steps will be driven by how well Claire handles them, but the doctor said that if everything goes perfectly she might be able to come home in two or three weeks.

Thank you so much for praying for Claire today. It is obvious that God has had His hand in this all along and will continue to be with us.

Tuesday, June 12, 2007

Day Five

Claire's surgery is still on for tomorrow afternoon, unless they have an emergency come in and have to postpone it. We still don't know the exact time of the surgery. She is last in line, and they said it would definitely be after 2:00 pm. It will take several hours, but the surgeon is going to send the nurse out to give us hourly updates.

Claire was very fussy today. She is tired of lying there with all those tubes hooked to her and she wants to be held. I'm ready for them to fix her so that we can do just that.

Eyes Open

Last night I asked the nurse if I could trim Claire's fingernails, because they were very long and she had scratched herself a few times. I gave her a nice little "manicure" and she didn't seem to mind at all.

Afterwards, she opened her eyes! Her eyelids were VERY heavy, but she looked at me and James for about 30 minutes while we talked to her. It was the first time James had seen her eyes (which are blue/gray), and the first time I had seen them since holding her right after she was born. It was very awesome. We told her all about her house where she is coming to live and the fun toys she has in her room. James is getting a cold so he wore a mask and gloves yesterday just to be safe, so I'm sure Claire was wondering who that strange creature with the blue mask was who was in her face.

Claire had her first poopy diaper yesterday, which James got the privilege of changing.

She had a few really fussy moments yesterday where she would do the "silent cry" that breaks my heart. One time she got so mad she held her breath and all the monitors went off, which scared us to death. The nurse ran over and bagged her and calmed her down. I guess all babies hold their breath when they get upset, but it is unnerving when there are alarms dinging all over the place and you can't pick them up to comfort them. At least we know she is a feisty little thing.

We will find out today what place in line Claire is for her surgery, so we will have an idea of exactly what time it will start tomorrow.

Monday, June 11, 2007

Day Four

They had placed an arterial line in Claire's foot so that they could take blood gases from her without having to stick her each time, but they had to remove the line yesterday because it was leaking. So today they had to do heel sticks to get the blood. Claire was NOT HAPPY. She turned red and arched her back and made a crying face, but she can't make any noise because of the ventilator. It broke my heart because they were hurting my baby and there was nothing I could do to comfort her. She has been agitated today, so they sedated her a little more and she is resting more comfortably now.

Dr. S came by and talked to us today. If Claire remains stable like she has been then they are planning to do her surgery on Wednesday, probably in the afternoon. She is going to try to do it laparoscopically if she can, which means Claire will not be in as much pain afterwards and will not have a big scar on her tummy. She said they won't know how big the hole in her diaphragm is until they get in there and look. If it's small they can stitch it closed, but if it's big they might have to use a gortex patch. There is a greater chance of re-herniation with a patch because it doesn't grow with the baby.

She said the respirator is doing very little breathing for Claire -- her setting is at 25 and they wean babies down to 17 before taking them off the ventilator, so she doesn't have far to go at all. To give us some perspective, she said some babies have their vents set to 60 or higher. Claire's right lung seems to be doing very well -- so far she has not had any pulmonary hypertension. She said Claire was "boring", which is a great thing in the NICU. I asked how underdeveloped her left lung is, and she said it is probably about half the size of her right lung. After they do the surgery and make room for it to grow it will get bigger, but it will always be smaller than her right lung.

After the surgery they will wean her off the ventilator, and they will also start giving her milk. She may not need a feeding tube if she is able to eat by mouth right away. I have been pumping, so hopefully there will be plenty of milk available for her when she's ready for it. When she gets off the ventilator and I am able to hold her then we will try breastfeeding.

Claire has gained 3 oz since she was born. She might be slightly jaundiced -- they are going to test her tomorrow -- but that is normal baby stuff and they aren't worried about it.

The pediatrician we selected (based on Dr. S's recommendation) is coming by this evening to see Claire, just to get acquainted.

Sunday, June 10, 2007

Day Three

I was discharged from the hospital this morning :-) We went straight from UAB to Children's, but were able to come home for a few hours this afternoon while the NICU was closed to unpack the car.

One of the surgeons who was on call tonight stopped by and told my mom that it is likely Claire will have her surgery on Wednesday. James and I hope to meet with Dr. S in the morning to find out for sure and to get more details.

The surgeon on call wanted to move Claire to a less-noisy area of the NICU since she is a CDH baby and they usually do not do well in active environments. However, Claire's nurse pointed out that the noise and activity have not affected her vitals at all -- she does not seem to mind having visitors or being touched. She is on very few medications, which the nurse said is also rare for CDH babies -- usually they have to be very heavily sedated, but she is only mildly so. So they are going to leave her bed where it is for now.

Tonight James read "Go, Dog Go!" to her, as well as "The Foot Book". She wiggled her legs, so she seems to have enjoyed the story time.


I will be continually adding pictures to Claire's photo gallery.

Day Two

They took me off the magnesium on Friday night, and I finally got to go see Claire on Saturday. Right before I got there she opened her eyes for my mom and stepdad...



They moved her bed from the wall where the ECMO candidates are to another wall, because they no longer think she is a candidate (great news!) She was hiccupping all day, which the doctors were surprised at.

Last night the nurse let James and I give Claire a sponge bath. We changed her diaper and she has a very cute tooshie.

Friday, June 8, 2007

Day One

Claire is on a conventional ventilator and is sedated. So far she is very stable, and they have been able to slowly wean down her oxygen (she's down from 100% to 40%). Dr. S, who we met with in March, will be her surgeon. They will continue to monitor her blood gases throughout the weekend, and will make a decision early next week as to when to do her hernia repair surgery.

Her stomach and about half of her intestines are definitely up in her chest, which has caused her left lung to be underdeveloped. Her right lung is close to normal size but is squished by her heart, which is shifted over to the right. They did an echocardiogram on her heart and the blood flow looks good. She had LOTS of visitors today from her aunts, uncles, and grandparents.

I have been stuck at UAB Hospital all day because they are still giving me magnesium via an IV. They are going to discontinue it tonight and tomorrow I will FINALLY be able to go over to Children's and see my Claire bear. In the meantime James has been going back and forth, talking with the doctors and nurses and bringing me updates and lots of pictures.

She's Here!


Since my blood pressure was so high they went ahead and induced me. It didn't take much to get labor started and things went pretty quickly. Claire Elizabeth Williams was born at 10:21 pm on 6/7/2007. She weighs 5 lbs, 8 oz and is 19 inches long. She got a 7 and an 8 on her APGAR tests, and we were all really surprised that she pinked up and cried after she was born! (My stepdad could hear her from out in the hallway.)


The NICU team was ready to intubate her immediately after she was born, but since she was crying and breathing well on her own they held off. They did go ahead and put a tube down her throat to decompress her stomach to keep it from taking up more lung space. I got to hold Claire for a few seconds before they took her to the NICU. For the first hour she was on an oxygen mask/tent only, but then started really having trouble getting rid of CO2 so they intubated her and transported her to Children's Hospital.

They are going to do an x-ray to see how severe her hernia is, how many organs are in her chest and how big her lungs are. James is on his way over there now to see about her. My blood pressure is still really high so they are giving me magnesium sulfate via an IV (so I am stuck here for at least 24 hours).

Here are some more pictures of Claire.

Thursday, June 7, 2007

Baby Coming

This is Cindy's mom. She saw her OB today and her blood pressure is "through the roof." They said she has preeclampsia and want her to be admitted now and will try to induce this afternoon. She is 36 weeks along. She has been having a LOT of swelling, but on Tuesday of last week her blood pressure was fine. Things change quickly. We are on our way down there. Keep them in your prayers.