When we toured Children's Hospital last month there was a baby boy with CDH who had been there for several months. One of the nurses put me in contact with his mom, and we have been emailing back and forth for a while. We met for lunch today and she "showed me the ropes" of the hospital.
Her baby finally came off the ventilator last week. He is still on oxygen and has a feeding tube, but hopefully will be able to go home soon. She has seen eleven CDH babies come through since she has been there, and only one of those didn't make it. She had great things to say about the doctors and nurses up there.
My belly is getting HUGE and Claire has been moving around a LOT. James felt her kick for the first time a few weeks ago and was thrilled. We got a crib and started fixing up her room -- I posted some pictures of our handiwork in the photo gallery. I am looking forward to some fun baby showers next month.